Jennifer Payne_The Patient Voice est.1973

Passionate*Potential*Policy Driven: PKU

Rare is a Gift. There is a shower of blessings for those who reach behind the curtains of waterfall.

Unleash your patient power, there are no limits! Contact me below!  

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Your journey to awesomeness begins with a purpose!

PKU is #MADEFOR THIS! 

DONATE NOW - Tough Mudder ! 

Please join me and my fearless team efforts as we Get Down and Dirty to Make a Difference for PKU!

Click here for updates to the online fundraising page and learn how you can join the camaraderie & help champion A cause: 

  • Awareness for PKU
  • Amplify the patient voice in R&D
  • Attract funding for medical foods and drug studies, or just Advocate!

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In the crusade for Cures!

Still in the fight! Add name!

Petition the President now to Bend the Arc of Justice! Help stop the discriminatory health policy and unethical, prohibited federal operations denying access to coverage for lifesaving treatment with medical foods for PKU adults who have no other options.

Listen to the rock version:

MP3download here:

(vocalist: Jayme Salviati, lyrics: Jennifer Payne)